The Italian Association of Poland Syndrome is a charity founded by parents and patients who have joined together with the aim of providing concrete help in terms of information and exchange of experiences.
In many cases, due to the rarity of the pathology, families cannot have access to the necessary support that would enable them to better deal with the situation, including psychological support.
The Association aims to reach people and families of people affected by Poland Syndrome, as well as doctors and everyone who might be interested in knowing, helping and supporting the Association’s program.
Poland Syndrome is a rare disease affecting one in every 20-30,000 children and characterized by unilateral impairments to the muscles of the chest or of a upper limb, usually on the right side.
As of today, the cause of Poland Syndrome is unknown. It has been theorised that it could be a genetic disorder.
Impairments related to Poland Syndrome are not severe to such an extent as to hinder affected children psychophysical development. An appropriate training enables to develop manual dexterity even for people affected by the most severe abnormalities.
I grew up with a lot of friends and the immense love of my family who has always supported me. I have always had the strength to overcome all my limits. I have practiced different sports, such as tennis, swimming, basketball, fitness and I have travelled around the world.
Over the years, I designed a glove which would allow me to exercise in the gym and I attended several conferences to present it. Then, I managed to win a call for bids to carry out this project, which is still in progress.