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Ilaria’s story

My name is Ilaria, I’m 22 years old and at the moment my life is running pretty smoothly. I am studying at the University to

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Jair’s story

My name is Jair I’m 35 years old. I am a Poland Syndrome carrier and a founding member of Aisp.At the end of 2002 I

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Luca’s story

My Name is Luca this is my tiny story. 27 May 1969: it’s my birthday. I was born suffering from Poland Syndrome, but at the

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Kevin’s story

My name is Kevin, I am 11 years old and I am a Poland Syndrome carrier. It affected the left side of my body. I

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Anna’s story

My name is Anna, when I was 9 years old I used to sing in the church choir and I would see two girls playing

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Matteo’s story

I’m Matteo I grew up with a lot of friends and the immense love of my family who has always supported me. I have always

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Nicolò’s story

My name is Nicolò, I am a 24-year-old guy from Rome and shortly after my birth I was diagnosed with a rare disease, Poland Syndrome:

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The Story of Erica and Cloe

We are Erika and Cloe , The first days after Cloe’s birth were a bit hard…I loved that baby, but I was worried about how

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Daniela’s story

I’m Daniela our experience began when our second child, Andrea, was born. Our shock was great since during the pregnancy none had told us the

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Associazione Italiana Sindrome di Poland ODV

Sede Legale: Via Donghi n. 95r 97r 16147 Genova

Codice FIscale: 95084970102

Tel. 0105222238 ~ Fax 0108562263

segreteria@sindromedipoland.org

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