Our Stories

My name is Jair I’m 35 years old. I am a Poland Syndrome carrier and a founding member of Aisp.At

I’m Daniela our experience began when our second child, Andrea, was born. Our shock was great since during the pregnancy

My Name is Luca this is my tiny story. 27 May 1969: it’s my birthday. I was born suffering from

My name is Anna, when I was 9 years old I used to sing in the church choir and I

My name is Kevin, I am 11 years old and I am a Poland Syndrome carrier. It affected the left

My name is Nicolò, I am a 24-year-old guy from Rome and shortly after my birth I was diagnosed with

We are Erika and Cloe , The first days after Cloe’s birth were a bit hard…I loved that baby, but

My name is Ilaria, I’m 22 years old and at the moment my life is running pretty smoothly. I am

I’m Matteo I grew up with a lot of friends and the immense love of my family who has always